content tagged with sma

‘Scientific efficacy of gene therapy for SMA is certified, don’t prevent campaigns’

LAWYER DİLŞAD ENHOŞ

‘Scientific efficacy of gene therapy for SMA is certified, don’t prevent campaigns’

In a statement released by Health Minister Koca, it was said, “There has been no concrete data indicating that the method put forward as gene therapy scientifically works.” However, the related medicine is now in the category recognized by the state.

5 January 2021 Ayşegül Özbek

‘SMA campaigns make the state look weak,’ says Health Minister Koca

‘SMA campaigns make the state look weak,’ says Health Minister Koca

Several MPs, artists, physicians and scientists have been campaigning on social media, demanding that the three quarters of Turkey’s 2020 grand New Year lottery prize transferred to the Wealth Fund be used for the treatment of children with SMA.

The price of saving your child

PARENTS OF CHILDREN WITH SMA TELL

The price of saving your child

Doğu’s mother Şive Ülker, Deniz’s mother Zeynep Elmas and Sare’s mother Aynur Aras did not even know what SMA was before their children were diagnosed with it.

20 August 2020 Yasemin Akyol Başar